Communication Bridge 3 Study

Study Description:
The Communication Bridge 3 Clinical Trial is designed to identify evidence-based strategies to maximize communication participation and quality of life and minimize burden for person with Primary Progressive Aphasia (PPA) and their communication partners.
Aphasia Friendly Study Description:
Communication Bridge is a research study for primary progressive aphasia (PPA). The study is for people with PPA and their communication partner. Both people participate in speech therapy. The study lasts about 1 ½ years. You can participate from home. All sessions use videochat. All technology is provided. There is no cost to participate.
Inclusion / Exclusion Criteria:
Inclusion Criteria (Person with Primary Progressive Aphasia) Meets diagnostic criteria for primary progressive aphasia (PPA), of any subtype (made by experienced clinician and/or confirmed by medical record review) and of mild to moderate severity (as informed by neuropsychological testing, screening measures, and study team review). Adequate hearing (aided or unaided) for communicating with others in a crowded room (by self-report). Adequate vision (aided or unaided) for reading a newspaper, or other functional materials (by self-report). English as primary language used in daily communication activities (by self-report) Participants with no current serious medical, neurological, or psychiatric illness, other than PPA, at the time of enrollment will be recruited. Participants will not be excluded if they have chronic conditions, such as hypertension or hypercholesterolemia that are well controlled with medications. Similarly, those taking antidepressants or anxiolytics will not be excluded. Have an individual who can serve as their ‘care partner’ for the duration of the study. Inclusion Criteria (Co-enrolled care partner): Age 18 and older A ‘care partner’ is an informal caregiver (typically a family member or friend) who has known the participant for more than 12 months, has close and regular contact with the participant, and provides emotional, communication, and/or activities of daily living support to the participant. English as primary language used in daily communication activities (by self-report) Adequate hearing (aided or unaided) for communicating with others in a crowded room (by self-report) Adequate vision (aided or unaided) for reading a newspaper, or other functional materials (by self-report) Able to pass technology screening and demonstrates sufficient knowledge for use of video conference and Communication Bridge web application use (with or without training) Care partners will be excluded if they have a pre-existing communication impairment that would affect study participation (e.g., aphasia, dementia)
Principal Investigator:
Emily Rogalski
Contact Email:
emily.rogalski@bsd.uchicago.edu
Condition
Primary Progressive Aphasia
Observational or Treatment:
Treatment
Type of Treatment:
Speech Language Therapy
Duration of Study:
Clinical Trial Length - 18 months
Study Start Date:
Study End Date:
Costs or Reimbursement:
There are no costs to participate. Compensation will be provided.
IRB Approval #
1175
Contact
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